February Neuropathy Support Group Meeting

We had another great neuropathy support group meeting today in Palm Springs, Ca.
Our group had 5 new members and our total membership is near 60.

Next month our group will have a guest speaker. Dr. Sy Young, Neurologist
March 12th at 1:30 pm at the Mizell senior center in Palm Springs, Ca.

visit our web site www.desertneuropathysupportgroup.org'
our facebook page under desert neuropathy support group
and our blog www.desertneuropathysupportgroup.blogspot.com

See you next month!

David Hines
co-leader

Misdiagnosed

I went to see my neurologist Dr. Escutin at Loma Linda Univ Medical Center today and he told me I DO NOT have CIDP. I was misdiagnosed in 2007 by Dr. Boutros in Murrieta, Ca.

I received IVIg infusions for over two years for nothing. All a complete waste of time and a very large amount of my money and insurance money.

My diagnosis is Diabetic polyneuropathy, Painful Neuropathy, Disturbance of the skin sensation, Diabetes.

I will be writing more about this in future post.

David

You make me smile

Desert Oasis Medical group update

I received a referral from the desert oasis medical group to see the neurologist.
Dr. Young is his name and there are some members in our support group who go to him and they said they like him so that is good news and like always I will keep
you all updated.

Thank you,

David Hines
Neuropathy Patient Advocate

Ask the Doctor about Autonomic Neuropathy

Autonomic neuropathy involves damage to certain nerves that run through the peripheral nervous system. Peripheral nerves transmit electrical signals from the brain and spinal cord to and from the rest of the body. Each nerve fiber serves a dedicated function: motor nerves control movement; sensory nerves control physical sensation; and autonomic nerves transmit signals for the "automatic" functions, such as heart rate and blood pressure, which require no conscious control.

Because autonomic nerves help control virtually every organ in the body, the symptoms of autonomic neuropathy can be highly varied and widespread. Common complaints include dry eyes and mouth, reduced or excessive sweating, bloating, nausea, or episodes of diarrhea. Autonomic functions decline to some degree with normal aging.

Autonomic neuropathy can worsen, improve, or continue unchanged depending on the severity and progression of the underlying cause. The most common cause is diabetes. Severe cases of autonomic neuropathy can result from autoimmune or bone marrow disorders, certain toxins and medications, and rare genetic conditions. In some cases, no cause can be identified.

Some degree of autonomic neuropathy occurs in the majority of neuropathy cases.
Patients with neuropathy affecting their sensory nerves typically have more severe foot and lower leg involvement; the condition is often aggravated by additional autonomic impairment in affected ares-for example, coldness, loss of sweating and hair, and susceptibility to foot ulcers.

Louis H. Weimer, M.D., is co-director of Columbia Neuropathy Research Center and associate clinical professor of neurology at Columbia University in New York, NY