Neuropathy Advocate and Patient Update

Hi everyone, I got to thanking about my life changes since I was dx. I now love helping others with there neuropathy. I belong to The Neuropathy Association. I went to Las Vegas to support my friend Michelle from the Alliance for Plasma Therapy. It was a great successful fund raiser. Last June I was able to go to Sacramento for a Neuropathy Action Day and it to was a huge success. Now this coming Dec 3- 5. I will be able to go to Washington D.C. for a Neuropathy Summit where Doctors and Patients alike to meet together and co-mingle and share
each other's thought and opinions.

In 2008 I started up a neuropathy support group in Murrietta, Calif. and then another in Palm Springs, Calif. Where we enjoy over 60 members. I feel its time to start another group and I've decided on the Loma Linda Univ. Medical school and hospital area. We will be able to use a room at the univ. My neurologist works out of the university medical center and that was a big plus.

Thank you,
David Hines
Patient and Advocate

Misdiagnosed

I went to see my neurologist Dr. Escutin at Loma Linda Univ Medical Center today and he told me I DO NOT have CIDP. I was misdiagnosed in 2007 by Dr. Boutros in Murrieta, Ca.

I received IVIg infusions for over two years for nothing. All a complete waste of time and a very large amount of my money and insurance money.

My diagnosis is Diabetic polyneuropathy, Painful Neuropathy, Disturbance of the skin sensation, Diabetes.

I will be writing more about this in future post.

David

Loma Linda neurology

Well I go to Loma Linda Univ Medical Center tomorrow to see my neurologist (Dr. Escutin) to go over the results of my most recent series of test. I am excited and scared at the same time because he hinted a couple of months ago that my CIDP diagnosis might be incorrect and that would be a big blow. It would be like starting over with maybe a new treatment regimen. I pray and trust God for the outcome. God has not brought me thus far to give up on me now.

Jeremiah 29:11
Ecl. 3:1
Gal. 2:20

In Gods love,
David