Friday, November 28, 2008

IVIg infusion update for CIDP

I had my IVIg infusion this morning. I had gone into a semi-remittance state for about 10-12 days but today is came roaring back with a vengance. I was also due for a new fentanyl patch so I threw it on real quick but Nothing! No relief! I cannot believe how this disease progresses inspite of all the medications I take.

I get so frustrated I can hardly hold back my tongue.

What really upset me is I finally was able to get my dental insurance to get all the dental work I will need to fix what the fentanyl patch has done to my teeth and gums. I was in so much pain and was so weak I couldn't make it to my appointment and stayed in bed for much of the day. I now will have to wait until December 19th to see the dentist. The dentist told me last week after my x-rays and examination that is will cost $17,000 dollars and my co-pay will be over $6,000 dollars. They are giving me a $2,300 dollar line of credit so I'm so blessed even though sometimes it is hard to see. I do thank God for what He has done for me and what He is teaching me everyday. Patience is one and trust is another.

I'm pooped, so I'm finishing up and going to bed for the night.

God Bless and always know there is Hope and we need to keep it in motion.

David

CIDP Autoimmunedisease article

CIDP

Saturday, November 22, 2008

"Learning to Trust the Master"

A man and his dog are in the same car. The dog howls bright-moon-in-the-middle-of-the-night caterwauling howls. The man pleads, promising a daily delivery of dog biscuit bouquets if only the hound will hush. After all, it’s only a car wash.
Never occurred to him—ahem, to me—that the car wash would scare my dog. But it did. Placing myself in her paws, I can see why. A huge, noisy machine presses toward us, pounding our window with water, banging against the door with brushes. Duck! We’re under attack.
“Don’t panic. The car wash was my idea.” “I’ve done this before.” “It’s for our own good.” Ever tried to explain a car wash to a canine? Dog dictionaries are minus the words brush and detail job. My words fell on fallen flaps. Nothing helped. She just did what dogs do; she wailed.
Actually, she did what we do. Don’t we howl? Not at car washes perhaps but at hospital stays and job transfers. Let the economy go south or the kids move north, and we have a wail of a time. And when our Master explains what’s happening, we react as if he’s speaking Yalunka. We don’t understand a word he says.
Is your world wet and wild?
God’s greatest blessings often come costumed as disasters. Any doubters need to do nothing more than ascend the hill of Calvary.
Jerusalem’s collective opinion that Friday was this: Jesus is finished.
Such is the view of the disciples, the opinion of the friends, and the outlook of the enemies. Label it the dog-in-the-passenger-seat view.
The Master who sits behind the wheel thinks differently. God is not surprised. His plan is right on schedule. Even in—especially in—death, Christ is still the king, the king over his own crucifixion.
Can’t he do the same for you? Can’t he turn your Friday into a Sunday?
Some of you doubt it. How can God use cancer or death or divorce? Simple.
He’s smarter than we are. He is to you what I was to four-year-old Amy. I met her at a bookstore. She asked me if I would sign her children’s book. When I asked her name, she watched as I began to write, “To Amy …”
She stopped me right there. With wide eyes and open mouth, she asked, “How did you know how to spell my name?”
She was awed. You aren’t. You know the difference between the knowledge of a child and an adult. Can you imagine the difference between the wisdom of a human and the wisdom of God? What is impossible to us is like spelling “Amy” to him. “For as the heavens are higher than the earth, so are My ways higher than your ways and My thoughts than your thoughts” (Isa. 55:9).
I keep taking Molly to the car wash. She’s howling less. I don’t think she understands the machinery. She’s just learning to trust her master. Maybe we’ll learn the same.
From Next Door Savior© (Thomas Nelson Publishers, 2006) Max Lucado.

UpWords ® is a 501c3 nonprofit organization.

Friday, November 21, 2008

Wednesday, November 12, 2008

CIDP and Severe Neuropathic Pain ?

Does anyone, that has CiDP, also have severe neuropathic Pain?

I was reading an article by Richard J. Barohn, M.D., Professor of Neurology at the University of Texas Southwestern Medical Center at Dallas, TX

He says that, "painful paresthesias are not common" ? I was diagnosed with CIDP but I suffer from dibilitating neuropathic pain in my feet and hands daily and I am using the Fentanyl Patch, strength 75mcg, every 48 hours, Elavil 150mg a day and Neurontin 3600mg a day and I still suffer from the pain. I also undergo IVIg infusions every 14 days. I do have some ok days, pain at 2-3, but other days my pain shoots upwards to a
7-9 on the pain scale. So, I was wondering how common place or uncommon place is severe neuropathic Pain with a dx of CIDP?

Thanks for any information you might beable to share.

Warmest regards,

David Hines
Blogger for "Hope-in-motion"

Sunday, November 9, 2008

Saturday, November 8, 2008

Avalon Project - Declaration of Independence, July 4, 1776

Avalon Project - Declaration of Independence, July 4, 1776

I promise to keep this a Neuropathy information and education site....But I'm really into
the American History thing now I truly hope you enjoy what I've posting if not let me know.

God Bless America!

Campaign For Liberty

Campaign For Liberty

Education is power!

Talecris IVIg Product Gets FDA Approval for Serious Neurological Dis - GLG News

Talecris IVIg Product Gets FDA Approval for Serious Neurological Dis - GLG News

Wednesday, November 5, 2008

McCainBlogette.com - Great Blog !


McCainBlogette.com - Musings and Pop Culture on the Political Trail

I have come to love this daily blog by John McCain's daughter! I hope she continues to write and keep us updated on the "inside scoop" of the McCain family !

I will also miss the updates on Gov. Sarah Palin. I don't pay any attention to what
the disgruntled/unhappy former McCain aides say. They are all liars! I still love ya Sarah!

Common Sense !





Tuesday, November 4, 2008

My Office ! The buck stops here!

 
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IVIG Infusion for my CIDP

COMMON SENSE; Revisited

COMMON SENSE; Revisited

This is from the Ron Paul website. It is worth taking a look at, I am!