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Wednesday, August 20, 2008
Dr. Nitin Sethi, MD a friend of our community of PN'ers
Dr. Nitin Sethi, MD is currently an assistant professor of neurology for Cornell University. His patient-friendly weblog can be found at http://www.braindiseases.info/
Dr. Sethi is a friend of the Northern Calif Chapter of the Neuropathy Assoc. and the Southern Calif Chapter of the Neuropathy Assoc. If you have any questions regarding any neurological disorders, diseases etc. send me an email and I will do my utmost in getting an answer for you. Just please remember do so judiciously as His time is stretched in His everyday duties at Cornell University. You can also do your own research and share what you find with us and we could add it to our own blogs and websites. As information comes in I will share it with you as soon as I can get it posted.
Enjoy, oh happy day!
Chief Editor,
David Hines
NCCNA08@hotmail.com
Dr. Sethi is a friend of the Northern Calif Chapter of the Neuropathy Assoc. and the Southern Calif Chapter of the Neuropathy Assoc. If you have any questions regarding any neurological disorders, diseases etc. send me an email and I will do my utmost in getting an answer for you. Just please remember do so judiciously as His time is stretched in His everyday duties at Cornell University. You can also do your own research and share what you find with us and we could add it to our own blogs and websites. As information comes in I will share it with you as soon as I can get it posted.
Enjoy, oh happy day!
Chief Editor,
David Hines
NCCNA08@hotmail.com
Tuesday, August 19, 2008
New nurse for my IVIg infusions this week
I will meet my new nurse this friday the 22th. The person in charge of nursing schedules at Crescent Health Care in southern Cal called me and told me her name is Kathy. I had the same nurse for over 6 months until I moved so now I get to meet the new one. I will update you on how it all turns out. I continue to strive to keep "Hope in Motion". God bless, David
McCainBlogette.com - Musings and Pop Culture on the Political Trail
McCainBlogette.com - Musings and Pop Culture on the Political Trail
Posted using ShareThis
This blog is 99.999% neuropathy related. But...I consider the up coming elections a chance to vote my belief in who would be the best President in ALL areas including health. It is my belief that Senator John McCain is that person so from time to time
I will share things regarding His campaign. Thanks for your understanding and you
can trust me to always share the latest information regarding Peripheral Neuropathy.
Posted using ShareThis
This blog is 99.999% neuropathy related. But...I consider the up coming elections a chance to vote my belief in who would be the best President in ALL areas including health. It is my belief that Senator John McCain is that person so from time to time
I will share things regarding His campaign. Thanks for your understanding and you
can trust me to always share the latest information regarding Peripheral Neuropathy.
Monday, August 18, 2008
This is truly a "Hearts of Hope" story!
This is Arianna and her Mom Bahar. Please read there story at Sacramentoheartsupportgroup.blogspot.com! You can also scroll down to my Blog List and click on Hearts of Hope!
Tuesday, August 12, 2008
Busy day for the old "Hope in Motion" blog
The first picture is the new home and then a picture of the snow on the Mtn's in May
New nurse for my IVIg infusions
I received a message today from Crescent Health Care the company who handles my IVIg infusions. They handle everything from getting the "Gammaguard Liquid" to sending the product to me at home and sending the nurse to give me the infusion treatment. I get the infusions every 14 days. Well, I moved and I requested my regular nurse. She has been my nurse since January and I like her alot. And she is a christian which is the best part because she and I can talk openly about our faith and neither one of us get in trouble for sharing our faith with each other in this "politically correct" society we live in. Well, they said I cannot keep my good friend nurse Barbara. They said my new address is just to far for her to be allowed to travel. It would had been a 70 mile ride one way (but she told me if I were to request that I keep my same nurse they would let it happen but sadly she was wrong). I will have to get to know a new nurse. :(
Well, there is a "reason for everything" I trust God has a good one, He always does!
Well, there is a "reason for everything" I trust God has a good one, He always does!
New Support Groups in Southern California !
BREAKING NEWS ! Just coming into the news room. "Southern California Chapter of the Neuropathy Association" announces two new support groups. The Temucula valley and the Desert communities will launch there support groups in two weeks!
On August 27th, 2008 at 10:00am the Palm Springs area group will meet at Rick's restaraunt and Bakery on Palm Canyon Drive. For more information call: David Hines at (951) 671-5980 or (951) 852-7843.
The Temecula valley group will meet that same week (Exact date TBA).
Our goal is to have support groups throughout Southern California just as our good friends in Northern Calif has done. (see http://www.pnhelp.org/) This is very exciting news for the many people who suffer alone without anyone to talk to or to get information from. Please check back often for continuing updates regarding news from "SCCNA" and it's founding members. Let us all Choose Hope by putting Hope in Motion!
God bless,
David Hines,
Chief Editor and PN'er
"Together we can and will beat Neuropathy"
http://www.neuropathy.org/
On August 27th, 2008 at 10:00am the Palm Springs area group will meet at Rick's restaraunt and Bakery on Palm Canyon Drive. For more information call: David Hines at (951) 671-5980 or (951) 852-7843.
The Temecula valley group will meet that same week (Exact date TBA).
Our goal is to have support groups throughout Southern California just as our good friends in Northern Calif has done. (see http://www.pnhelp.org/) This is very exciting news for the many people who suffer alone without anyone to talk to or to get information from. Please check back often for continuing updates regarding news from "SCCNA" and it's founding members. Let us all Choose Hope by putting Hope in Motion!
God bless,
David Hines,
Chief Editor and PN'er
"Together we can and will beat Neuropathy"
http://www.neuropathy.org/
Saturday, August 2, 2008
Remission's and Relapse's Like a yo-yo
One of my neuropathies (there are hundreds of different neuropathies) is called CIDP
(Chronic Imflammatory Demyelinative Polyradiculoneuropathy). I under go IVIg infusions every 14 days. I will talk more about CIDP later. It presents it's self like a yo-yo. I have ok days and without warning I plunge back down with severe fatique (weakness) and severe pain. The pain feels like my feet, legs, and hands are on fire. I also get stabbing pains like an electric probe sticking me. I also experience terrible memory loss. I don't remember what I did yesterday much less last week. We had a 5.4 magnitude earthquake last week the 29th. I found out today by just having a casual conversation with my Mom and it just came up by her and I have no memory of anything! I really dislike not being able to remember things. It's scary.
I still lean on my faith. If it were not for my belief in Jesus Christ I would have given up already. I'm starting to really hurt sitting here. I usually stay in bed when I hurt like this but I also get "sick" and tired laying in bed. Oh well, hopefully tomorrow I will feel better. God Bless everyone,
David
(Chronic Imflammatory Demyelinative Polyradiculoneuropathy). I under go IVIg infusions every 14 days. I will talk more about CIDP later. It presents it's self like a yo-yo. I have ok days and without warning I plunge back down with severe fatique (weakness) and severe pain. The pain feels like my feet, legs, and hands are on fire. I also get stabbing pains like an electric probe sticking me. I also experience terrible memory loss. I don't remember what I did yesterday much less last week. We had a 5.4 magnitude earthquake last week the 29th. I found out today by just having a casual conversation with my Mom and it just came up by her and I have no memory of anything! I really dislike not being able to remember things. It's scary.
I still lean on my faith. If it were not for my belief in Jesus Christ I would have given up already. I'm starting to really hurt sitting here. I usually stay in bed when I hurt like this but I also get "sick" and tired laying in bed. Oh well, hopefully tomorrow I will feel better. God Bless everyone,
David
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