Loma Linda neurology

I went to Loma Linda university medical neurology dept and the doc ordered another EMG, Nerve Conduction test and a lumbar puncture. He also hinted around that he thought I might have been misdiagnosed! We will find out soon enough.

God's blessings,
David

God bless America

Praise Him through this storm

Hi everyone! I wish I would get to post on a daily basis but I skip around to different sites and now it's places like FaceBook and Twitter that are
wonderful networking sites for neuropathy and other reasons. I have met so many people on both who have one or another different types of neuropathies. As I type this I'm listening to a band called Casting Crowns a gospel group who have songs with great words that can be applied to different areas of my life. I will be 50 in January and my life now is wrapped around my advocating for myself and others and it is what gets me through each day not to mention my spiritual side and my Mom and Dad who are my rock. I been through many storms in my life and this is one of those storms that are big enough if I don't trust in someone or something this storm would wipe me off the map. In has tested me in so many ways and it always brings me back to God! It's a God thing! And I praise Him through this storm as the song goes. God bless everyone including the ones who do not believe in a higher power.

Casting Crowns A wonderful Video and Song

I was just having a God moment. He reminds me it is not what I have done or will do.
It is because my God is in control of everything. I love Him so!
I hope you enjoy it as much as I do! Please continue to scroll down and watch the other video's I have posted today! In Spite of my health problems I still love life and I still love Christ!

Interview with GOD !

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Awesome God by Michael W. Smith

God's Grace and Healing!

Oh yeahhhhhhhhhhhhhhhhhhhhhhhhhh !

As always God gets me through the hard times (and good). I awoke this morning to a beautiful day, it was sunny with clear skies, as always in the desert, and it was about 70 degrees! I went into another remission and I also had another IVIg infusion given to me by my favorite nurse "Kathy" !

I have been able to catch up on some much needed mail and phone calls but also trying not to catch up all in one day to overload my self. Tomorrow is another trip to my pcp in Lake Elsinore.

All the Glory to God!

Reaching unto Christ's full stature,

David

A child of God!

P.S. Stay tuned for my new blog coming soon"Counseling with a Purpose" on Blog spot.com

Counseling With A Purpose

I am praying about a new venture that God has put on my heart. This story actually began over a hundred years ago! I hope in the upcoming months to share this story with you but for now I will start with this.

My Grandfather, James Leon Clark (1908-1985) was a radio evangelist in the Los Angeles area until his death. He was my mentor and friend and I miss him dearly. I went with him to the radio studio as a young boy and dreamed of filling his shoes one day and that day has come as be begin 2009. His ministy was "Counseling with a purpose".

Now in my new life as advocate for a cure for peripheral neuropathy and a support group leader I feel God leading me into "Counseling".

I would like to counsel those who suffer from chronic diseases and share with them how God get's me through my days.

I feel blessed to have a heavenly father who loves me and comforts me.

Stay tuned for my new blog: Counseling with a purpose.blogspot.com

In Christ Love,
David

Choosing Hope
Hope in motion

Hillsong "I will run to You"

GOD IS IN CONTROL

"SOMETIMES STORMS OF LIFE COME TO TEACH US THAT GOD IS IN CONTROL, THAT WE MUST LEAN ON HIM AND LEARN TO BE THANKFUL FOR THE RICHNESS OF HIS BLESSINGS TO US"

-Max Lucado

IVIg infusion update for CIDP

I had my IVIg infusion this morning. I had gone into a semi-remittance state for about 10-12 days but today is came roaring back with a vengance. I was also due for a new fentanyl patch so I threw it on real quick but Nothing! No relief! I cannot believe how this disease progresses inspite of all the medications I take.

I get so frustrated I can hardly hold back my tongue.

What really upset me is I finally was able to get my dental insurance to get all the dental work I will need to fix what the fentanyl patch has done to my teeth and gums. I was in so much pain and was so weak I couldn't make it to my appointment and stayed in bed for much of the day. I now will have to wait until December 19th to see the dentist. The dentist told me last week after my x-rays and examination that is will cost $17,000 dollars and my co-pay will be over $6,000 dollars. They are giving me a $2,300 dollar line of credit so I'm so blessed even though sometimes it is hard to see. I do thank God for what He has done for me and what He is teaching me everyday. Patience is one and trust is another.

I'm pooped, so I'm finishing up and going to bed for the night.

God Bless and always know there is Hope and we need to keep it in motion.

David

Invisible Disabilities !

I would like to share one of my favorite web sites. One of the most common statements I hear are "But you look so good!" Well, if they only could see what I see and feel like I feel! Thus, the web site of the invisible disability advocate. Please take a few moments and click here: www.invisibledisabilities.ning.com/profile/David

Thank you and may God bless you,

David Hines

Support Group Meeting Update !

The desert neuropathy support group met last Friday at Bob and Odette's home. We had a really nice meeting. We all shared how we have been doing and how our overall health has been.

One of our members even helped us out on the latest information about medicare. He is a volunteer medicare counselor at a local senior center and was he helpfull. He was extremely
helpful for me because of my disability I will be going over to medicare before retirement age
after my COBRA insurance ends.

I heard from the Mizell Senior Center also today and we have hammered out the details for our future meetings.

We will start meeting every second Friday of the month starting with November. Therefore, our next meeting will be November 14, 2008 from 1:30 p.m. to 3:00 p.m.

The center will also start listing our meetings in there newsletter and information board. This is very good news since I expect our group to begin to grow as we get the word out to the community at large.

If you have any questions feel free to contact me. I will post the address and map in a future post.

Best Regards,
David

Politics and Neuropathy-President and our Health issues for our Future !

I know this is a blog about Neuropathy, health, pain, insurance, IVIg, CIDP, God, Life, The future, co-pays, government, etc.

This is a very important Presidential election year. Probably more important then any election since I've been alive (January 1960).

The next president will either change the way we receive treatment or make it better or worse. The next president could very well nominate 1 or even 2 Judges to the U.S. Supreme Court.

Joe the plumber from Toledo, Ohio has brought back some good memories for me. This could very well be "David the plumber" from Toledo, Ohio. Yes I once lived in Toledo from 1997-2005 and I worked for a local plumber named "Phil Schuster plumbing". Phil is a 2nd generation plumber. His Dad started the plumbing business early in the 20th century and Phil followed his foot steps. Phil is a licensed plumber in Toledo and Lucas County, Ohio. When I worked for Phil I was not required to have my own license as long as the owner was licensed. All my work was approved by my "licensed boss Phil Schuster" and then verified by the local plumbing inspector in the city of Toledo and county of Lucas, Ohio. Phil's business was a very prosperous one and very well could have exceeted $250,000 in income
a year easily. Plumber's as well as electricians make very good money.

Obama's people and the left wing news needs to do there homework and admit the truth. It amazes me to how these people think the American people are that stupid. Even plumbers are smarter than that !

So, in this time of changing politics and a new generation of young people it is my Hope that everyone does there due dilegents. If only all Americans could look back at the 1980's when a great man named Ronald Reagan led this country and was a wonderful example of how a
President should believe and act this country would not be where it is now and not going where it will go if Obama is the next president. I promise everyone who is reading this blog, if Obama gets into the White House this country will go to hell in a hand basket. Mark my words. If you think things are bad now you just wait ! The morals and values of our time is leading this great country down the sink with all the dirty water. Our future is at stake and the future of the new generation of young people. This country was founded on God and the trust of this country is printed on our currency, "In God We Trust" !

If we go back to the time when this nation trusted in God we would be a great country once again !

If Obama is elected the 44th President of the United States, socialism will quickly become the core of this land and evil will not be far behind. The history of John Adams, His Son John Quincy Adams and the 3rd President of the United States Thomas Jefferson are Presidents Americans should study. Not to mention George Washington and of course President Ronald Reagan.

Character could be the one word to sum it all up for us all. To quote a great book title, "When Character was King" does sum it all up. That book was all about a man who very well could have been a King. President Ronald Reagan was one of the top five Presidents who upheld the values of America and changed our great land for-ever and for the good of all mankind. May God bless Him and His family. Go ahead, read the book, it will change your life and how you view the world.

Trust in God and may God bless everyone,

Sincerely,
David Hines

Putting Hope in Motion and trusting in God !


I Hope and Pray you take some time out to view the you tube videos on my blog. Keep an open mind and remember that democrats and republicans both want a better country to live in.

Palm Springs Neuropathy Support Group

I wanted to let those that are interested we will be having our 2nd support group
meeting on the 24th of October a Friday at 10 am. If you are interested please respond to : SCCNA08@hotmail.com (Southern California Chapter of the Neuropathy Association08)

You can also comment on this blog entry and I will be in touch with you with the
information on our meeting site. I have been in touch with the Mizell Senior Center regarding a room to use for future meetings. They will be getting back to me soon I hope.
If you know anyone who might be interested please pass on the contact information for us to share with members of our group. We hope to grow in size over the up coming months and years. We also have a group in the Temecula, Lake Elsinore, Wildomar area's. If you live in that area get in touch with me and I can pass on information for that area's group. Thanks to all who have helped us in getting the word out about our group meetings in the Southern California area's. We hope and pray to start other meeting's in other area's of our state. If you have an area in which you would like to see groups started let me know and we can get the ball rolling for you.

God bless everyone,
David Hines
Advocate/Patient of CIDP

Doctor gives his new order

I went to see my neurologist yesterday and he said 6 more months added to your
sentence of hard labor at the prison camp of IVIg!


We believe I am benefiting from the once every 14 day infusions. I still get the roller-coaster ride effect being that I feel stronger some days and some days I
don't. That is the nature of the disease. Up and down, all around.

I will take what I can get. I continue advocating for all who suffer from this insideous disease they call "neuropathy".

Have a good day and may God bless !

Max Lucado and (John) 3:16 Live

New nurse for my IVIg infusions

I received a message today from Crescent Health Care the company who handles my IVIg infusions. They handle everything from getting the "Gammaguard Liquid" to sending the product to me at home and sending the nurse to give me the infusion treatment. I get the infusions every 14 days. Well, I moved and I requested my regular nurse. She has been my nurse since January and I like her alot. And she is a christian which is the best part because she and I can talk openly about our faith and neither one of us get in trouble for sharing our faith with each other in this "politically correct" society we live in. Well, they said I cannot keep my good friend nurse Barbara. They said my new address is just to far for her to be allowed to travel. It would had been a 70 mile ride one way (but she told me if I were to request that I keep my same nurse they would let it happen but sadly she was wrong). I will have to get to know a new nurse. :(

Well, there is a "reason for everything" I trust God has a good one, He always does!

New Support Groups in Southern California !

BREAKING NEWS ! Just coming into the news room. "Southern California Chapter of the Neuropathy Association" announces two new support groups. The Temucula valley and the Desert communities will launch there support groups in two weeks!

On August 27th, 2008 at 10:00am the Palm Springs area group will meet at Rick's restaraunt and Bakery on Palm Canyon Drive. For more information call: David Hines at (951) 671-5980 or (951) 852-7843.

The Temecula valley group will meet that same week (Exact date TBA).

Our goal is to have support groups throughout Southern California just as our good friends in Northern Calif has done. (see http://www.pnhelp.org/) This is very exciting news for the many people who suffer alone without anyone to talk to or to get information from. Please check back often for continuing updates regarding news from "SCCNA" and it's founding members. Let us all Choose Hope by putting Hope in Motion!

God bless,
David Hines,
Chief Editor and PN'er

"Together we can and will beat Neuropathy"
http://www.neuropathy.org/

News about new home

It's a beautiful day in SoCal (Southern California). I have a good reason to be very happy today in spite of my health issues. I got plenty of sleep last night which is rare for me considering my health problems. But today I feel good which is also rare for me. I have been searching for another place to live that is cheaper then where I live now. I was only looking for something else to rent knowing there was no way I would be able to buy anything on disability.

But, God is good. He opened a door that I thought I would never see. Home ownership, especially in these times of economic "disability". During one of my searches a couple of weeks ago I ran into a miracle, a used mobile home in a desert oasis called "Desert Hot Springs, Calif. About an hours drive from where I live now. The owner was the son of a woman who died four months ago and he just wanted to "unload" it and get some closure from losing his mother. He only wanted $10,000 dollars for it! On top of that he just had a new air conditioning unit put in less than two years ago that cost him nearly $6,000.00 dollars! To make a long story short I ask God to open the door if it was His will, and the door opened "Literally"! Yesterday I met the seller and finalized the deal. I'm now a proud owner of my own home! WOW!

This is something that would have never happened if it were not for a wonderful God who continues to look after me day after day.

I took pictures yesterday and I will post them as soon as I can.

No more rent payments! No more landlords! Wow, I'm so excited! And so blessed!

Have a wonderful day!