Talecris IVIg Product Gets FDA Approval for Serious Neurological Dis - GLG News

This is another great informational article on the great news of a FDA approval for the
much needed drug approved to treat CIDP with IVIg infusion's. This is a first my friends. For those that are struggling to get or keep approval from insurance company's and get this much needed drug.

Talecris IVIg Product Gets FDA Approval for Serious Neurological Dis - GLG News

Gamunex Drug for CIDP Neuropathy

The link below is an article announcing the approval by the FDA for treatment for CIDP using the IVIg.
This is very good news for me and others who have CIDP and IVIg infusions.

cidp - Google Blog Search

Health: Hearsay and Headlines: FDA Approves Treatment for Rare Neurologic Disease

Another article regarding the new drug to treat CIDP. It's called Gamunex. This drug will be used as IVIg treatment. I undergo this infusion type drug through Baxter and Crescent health care in southern California.


Health: Hearsay and Headlines: FDA Approves Treatment for Rare Neurologic Disease

FDA grants approval to Talecris Biotherapeutics for Gamunex for neurological disorder CIDP

This is news from today about a new drug to treat CIDP. I undergo IVIg but it's called "off label". This
is the first drug approved by the FDA to treat CIDP.




FDA grants approval to Talecris Biotherapeutics for Gamunex for neurological disorder CIDP

First Palm Springs Support Group had a Rocky Start

For nearly seven months I've been through a process of starting two support groups in the southern California area. This process is no easy task. I had to work hand in hand with the national headquarters for the Neuropathy Association in New York. We finally picked the dates and locations and times. I also was moving from one area of socal to another. It was not a large distance about 60 some odd miles.

About two weeks or so before the scheduled dates one of the participants volunteered to handle one of the groups allowing me more time to concentrate on the group out in my new area of Palm Springs and it allowed me some much needed time and energy to do the things that people do after a move.

Everything seemed like it was coming together and the date was soon approaching. Then it happened. My CIDP neuropathy flared up and showed its ugly face with full force. It hit me during the night while trying desperately to get to sleep. By the time the sun was starting to rise I was in the worst state I'd been in some time. I kept telling my caregiver I had to go to my first support group meeting and she said your nuts. she was right. I continued to get worse as the minutes and hours past. I told her she needed to call them but I could not even think clearly through the pain to tell her the names. She tried and tried to find something about the group on my desk or my computer. My office area was still a complete mess from moving and most stuff had not even been unpacked. She gave me a strong dose of medicine after talking with my neuro. She said at one point before I finally passed out from the meds that she was going to take me to the emergency room. Last year before my IVIg and Fentanyl going to the hospital was an every week thing. I eventually was out of it and the following days were as dark as the first one. They call it simply a "relapse". It is very common in patients with CIDP. It's like a roller coaster ride of ups and downs.

I finally got some emails out to some of the group but have not heard back from any of them. I can hardly blame them from having to show up at the meeting spot and me not there. I could understand to some point but I would hope they would forgive me after finding out what had happened. So, maybe one of them will read this blog and pull together and get another date set that we could meet.

This disease has a life of it's own. I wish I could have my "other" life back. Oh well, Thanks to all, and to all a good night (or morning).

David

Sarah Palin Bio

As you probably have already heard Gov. Sarah Palin from the state of Alaska is John McCain's V.P. selection. Here is her Bio just released by the RNC. Enjoy this wonderful story about a "Hockey Mom" turned Maverick!