Neuropahty updates and corn flakes

Hi everyone, Here I go again letting to much time go by between post. So much going on. I"ve been to Sacramento for a Neuropathy Action day. I returned home from Las Vegas and didn't put one dime in a slot machine but there for a great cause, a fund raiser for a documentary called "Dying to help". Google it. I'm going to get the ball rolling with the non-profit and I"m going to do my damnest to get to Washington D.C. first weekend in December for a neuropathy summit. Keep me in your prayers. I'm eating sugar frosted corn flakes as I type

Desert Neuropathy Support Group

I am sorry for not posting more often. I have recently been busy starting more blogs including my support group blog and web site. The web address is www.DesertNeuropathysupportgroup.org and our blog site is www.Desertneuropathysupportgroup.blogspot.com

For now I hope you find out more about me and the others. More resources is www.foundationforpn.org www.neuropathy.org My personal 24/7 phone number is (760) 288-6467 and my email is david-hines@hotmail.com. www.neuropathyaction.org

I look forward to meeting you or hearing from you.

Thank you,
David Hines
Neuropathy Patient, support group leader and advocate.

Find me on facebook at www.facebook.com/Hope.in.Motion4Neuropathy and twitter at www.twitter.com/cimfree

My political blog is at www.Onthepoliticalside.blogspot.com

Misdiagnosed

I went to see my neurologist Dr. Escutin at Loma Linda Univ Medical Center today and he told me I DO NOT have CIDP. I was misdiagnosed in 2007 by Dr. Boutros in Murrieta, Ca.

I received IVIg infusions for over two years for nothing. All a complete waste of time and a very large amount of my money and insurance money.

My diagnosis is Diabetic polyneuropathy, Painful Neuropathy, Disturbance of the skin sensation, Diabetes.

I will be writing more about this in future post.

David