I am 48 years old. In the fall of 2006 I began to have symptoms of tingling and burning sensations in my toes. I worked as a haul truck operator on southern California's mine sites. By January of 2007 I could no longer get my steal toe boots on. That day my life changed forever. After many doctor appointments and many test were performed I was diagnosed with peripheral neuropathy including Chronic Inflammory Demylinating Polyradiculoneuropathy (CIDP).
These are variants of different types of peripheral neuropathy. I hope to bring forth awareness of this rare disease. Another form of the diagnosis is called Motor sensory mixed axonal and demyelinative polyradiculoneuropathy.
It is difficult to explain this disorder. It is a nerve disorder that effects the peripheral nerves. This does not effect my central nervous system.
The symptoms of my disease are tingling, burning, stabing and many other pain sensations. When explaining my symptoms it is like a paradox. In other words, it feels like my feet are on fire and in a bucket of ice at the same time!
Some suffer's only feel this pain in there feet and in others in can spread. My neuropathy spread up my legs and into the lower back area. Sometimes my burning in my upper legs feels like a bad sunburn. These pain symptoms can really change the way you live life. I hope to post more as often as I can. My symptoms have also gone from the tips of my fingers up my arms. This can cause me to feel like my hands are in a fire place. There is so much I want to share with you all. This disease can be a very lonely disease. I now am an advocate for a cure for peripheral neuropathy and all neurological diseases/disorders. Over time I will share other web sites to visit that can help in the process of sharing information that can help educate people about this insidious, disabling ailment. Until next time, God bless, David.
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1 comment:
Hi David, my name is David Rosenberg,and I am a peripheral nerve surgeon with offices in LA and Newport Beach. My assistant came across your blog and point it out to me, I may be able to offer you a treatment for your condition. There are no guarentees, but you may have a component of your neuropathy that is due to nerve compression. Please check out these websites (www.dellon.com and www.rosenbergplasticsurgery.com). and I hope the information on them helps you in some way. Take care, David Rosenberg
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