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Tuesday, March 31, 2009
Sunday, March 29, 2009
Thursday, March 26, 2009
Saturday, March 21, 2009
Medical Marijuana study results for Neuropathic Pain
Medicinal Marijuana Effective For Neuropathic Pain In HIV, Study Finds
ScienceDaily (2008-08-07) -- In a double-blind, placebo-controlled clinical trial to assess the impact of smoked medical cannabis, or marijuana, on the neuropathic pain associated with HIV, researchers have found that reported pain relief was greater with cannabis than with a placebo. ... > read full article
Wednesday, March 18, 2009
Sunday, March 15, 2009
Saturday, March 14, 2009
New Symptoms-Not Good!
I was just getting ready to lay back down and think about my new symptoms that started at day break Monday March 9th, 2009.
Then I thought, mmmmmmmm (thinking)mmmmmmm. I have only shared this with my Mother, Father and the doctors and nurses at Desert Regional Hospital on Wednesday March 11th, 2009.
I awoke and instantly said to myself, Ut Oh..that is not good.
My right hand, fingers, wrist, arm and shoulder were tingling, (burning which is normal for me) and limp. I could not grasp and hold my tooth brush (i'm right handed).
I could not raise my arm above my elbow. This was not right at all and I got scared. That is why I didn't go to the hospital until Wednesday, two day later. I did not contact my neurologist yet. He is about 50 miles away.
The hospital did blood work, MRI etc., etc. and nothing. The emeregency doctor said it's neurological but he couldn't put his finger on it and tell me for sure what had happen. I went to my support group yesterday and did not share this new problemo. Stupid for me but I am very uneasy about this and I'm not sure If I can handle more bad news. So, I'm sharing now. I called my neuro tho'yesterday and left a message with the nurse. I will be right on it Monday AM.
Please keep me in your prayers.
God Bless and Thank you for reading and listening to me.
David
Then I thought, mmmmmmmm (thinking)mmmmmmm. I have only shared this with my Mother, Father and the doctors and nurses at Desert Regional Hospital on Wednesday March 11th, 2009.
I awoke and instantly said to myself, Ut Oh..that is not good.
My right hand, fingers, wrist, arm and shoulder were tingling, (burning which is normal for me) and limp. I could not grasp and hold my tooth brush (i'm right handed).
I could not raise my arm above my elbow. This was not right at all and I got scared. That is why I didn't go to the hospital until Wednesday, two day later. I did not contact my neurologist yet. He is about 50 miles away.
The hospital did blood work, MRI etc., etc. and nothing. The emeregency doctor said it's neurological but he couldn't put his finger on it and tell me for sure what had happen. I went to my support group yesterday and did not share this new problemo. Stupid for me but I am very uneasy about this and I'm not sure If I can handle more bad news. So, I'm sharing now. I called my neuro tho'yesterday and left a message with the nurse. I will be right on it Monday AM.
Please keep me in your prayers.
God Bless and Thank you for reading and listening to me.
David
COMMENTS LEFT ANONYMOUSLY
The following was a comment left by "Lory" regarding her daughter but left no way to contact her. Please if you see this give me a way to contact you in order to try and help your daughter.
Hi David,Our daughter was dianosed with CIDP three years ago. She is 14 and still has not regained use of her feet. They do not lift. The doctor told us that's pretty much it. She will not walk correctly again. Anyway, she was just asking me if there was any counseling she could get to help her deal with her condition. she said she feels like she just wants to hide in our house and not try anything new because it makes her stressed because she's afraid she won't be able to do it. For example, she has a trip to Washington DC to go on for her eigth grade trip. she's afraid she won't be able to keep up with everyone and take part in the activities. She wants to go to Christian counseling or talk to other people with her condition to maybe get help. Anything you can help us with, we appreciate it. Thanks, Lory
February 17, 2009 6:02 PM
Thanks,
David Hines
Hi David,Our daughter was dianosed with CIDP three years ago. She is 14 and still has not regained use of her feet. They do not lift. The doctor told us that's pretty much it. She will not walk correctly again. Anyway, she was just asking me if there was any counseling she could get to help her deal with her condition. she said she feels like she just wants to hide in our house and not try anything new because it makes her stressed because she's afraid she won't be able to do it. For example, she has a trip to Washington DC to go on for her eigth grade trip. she's afraid she won't be able to keep up with everyone and take part in the activities. She wants to go to Christian counseling or talk to other people with her condition to maybe get help. Anything you can help us with, we appreciate it. Thanks, Lory
February 17, 2009 6:02 PM
Thanks,
David Hines
Peripheral Neuropathy Support Group News
Welcome to my blog. Yesterday we had our monthly support group meeting and what a wonderful meeting it was. We had around 8 new members join us and I am so grateful for there presence.
The current group I attend is the Palm Springs neuropathy association support group. We meet the second Friday of the month at 1:30 to 3:00 PM. I moved to the Palm Springs area last year, a community in southern California that is visited by snow birds from the north and college students during spring break and others around the world for its mild weather and beautiful landscape and views of the mountains that encase the desert. It is also a year round home to many retired people and celebs. It is a heaven to hundreds of non-profits and philanthropies of all kinds.I have been coming to this area all of my life threrfore I know the area very well. After being diagnosed with a variance of peripheral neuropathy (PN) called CIDP (Chronic Imflammatory Demylenating Polyradiculoneuropathy) over two years ago I new I had to spread the word and awareness regarding this rare disease. I live in a highly populated area of the world and there were only 4 support groups within a 200 square mile area. It is my goal to get started as many support groups as possible in my lifetime inorder that no one can go without answers to there questions and others who are alike with the same disorder.
We meet to educate, support, and lend an ear and/or shoulder to listen to and/or to cry on. We can relate to each other and understand what other's are experiencing. We try to answer other's questions and if we cannot we will find the answer. There are reported to be hundereds of different types of neuropathies. We are all so different but at the same time all so much alike.
I am a member of the neuropathy association (http://www.neuropathy.org/). The GBS/CIDP Foundation International serving patients of GBS, CIDP and Variants with support, education and research. (http://www.gbs-cidp.org/).
The next support group meeting in the Palm Springs area is April 10th, 2009 at 10:00 AM at the Mizell Senior Center in Palm Springs. For more information you can contact me at my email address: david-hines@hotmail.com or you can call me at: (760) 671-5980 anytime.
Once again, Thanks to everyone who attended the meeting and I look forward to learning more about each one of you and hopes of a long friendship.
In closing, I recommend the following books, "Numb Toes and Aching Soles" "Numb Toes and Other Woes" both by John Senneff. "Peripheral Neuropathy When the Numbness, Weakness, and Pain won't stop" by Doctor Norman Latov, M.D., PhD.
In God's Healing Hands,
David Hines
Advocate, Patient and Child of God
The current group I attend is the Palm Springs neuropathy association support group. We meet the second Friday of the month at 1:30 to 3:00 PM. I moved to the Palm Springs area last year, a community in southern California that is visited by snow birds from the north and college students during spring break and others around the world for its mild weather and beautiful landscape and views of the mountains that encase the desert. It is also a year round home to many retired people and celebs. It is a heaven to hundreds of non-profits and philanthropies of all kinds.I have been coming to this area all of my life threrfore I know the area very well. After being diagnosed with a variance of peripheral neuropathy (PN) called CIDP (Chronic Imflammatory Demylenating Polyradiculoneuropathy) over two years ago I new I had to spread the word and awareness regarding this rare disease. I live in a highly populated area of the world and there were only 4 support groups within a 200 square mile area. It is my goal to get started as many support groups as possible in my lifetime inorder that no one can go without answers to there questions and others who are alike with the same disorder.
We meet to educate, support, and lend an ear and/or shoulder to listen to and/or to cry on. We can relate to each other and understand what other's are experiencing. We try to answer other's questions and if we cannot we will find the answer. There are reported to be hundereds of different types of neuropathies. We are all so different but at the same time all so much alike.
I am a member of the neuropathy association (http://www.neuropathy.org/). The GBS/CIDP Foundation International serving patients of GBS, CIDP and Variants with support, education and research. (http://www.gbs-cidp.org/).
The next support group meeting in the Palm Springs area is April 10th, 2009 at 10:00 AM at the Mizell Senior Center in Palm Springs. For more information you can contact me at my email address: david-hines@hotmail.com or you can call me at: (760) 671-5980 anytime.
Once again, Thanks to everyone who attended the meeting and I look forward to learning more about each one of you and hopes of a long friendship.
In closing, I recommend the following books, "Numb Toes and Aching Soles" "Numb Toes and Other Woes" both by John Senneff. "Peripheral Neuropathy When the Numbness, Weakness, and Pain won't stop" by Doctor Norman Latov, M.D., PhD.
In God's Healing Hands,
David Hines
Advocate, Patient and Child of God
Thursday, March 12, 2009
Please Read Kristen's blog at CIDPandMe!
CIDPandMe by kristen. Look for blogs I follow. It's good reading about Sally's story.
www.CIDPandMe.blogspot.com
God Bless,
David Hines
www.CIDPandMe.blogspot.com
God Bless,
David Hines
Wednesday, March 11, 2009
Monday, March 9, 2009
Saturday, March 7, 2009
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