Welcome to my blog. Yesterday we had our monthly support group meeting and what a wonderful meeting it was. We had around 8 new members join us and I am so grateful for there presence.
The current group I attend is the Palm Springs neuropathy association support group. We meet the second Friday of the month at 1:30 to 3:00 PM. I moved to the Palm Springs area last year, a community in southern California that is visited by snow birds from the north and college students during spring break and others around the world for its mild weather and beautiful landscape and views of the mountains that encase the desert. It is also a year round home to many retired people and celebs. It is a heaven to hundreds of non-profits and philanthropies of all kinds.I have been coming to this area all of my life threrfore I know the area very well. After being diagnosed with a variance of peripheral neuropathy (PN) called CIDP (Chronic Imflammatory Demylenating Polyradiculoneuropathy) over two years ago I new I had to spread the word and awareness regarding this rare disease. I live in a highly populated area of the world and there were only 4 support groups within a 200 square mile area. It is my goal to get started as many support groups as possible in my lifetime inorder that no one can go without answers to there questions and others who are alike with the same disorder.
We meet to educate, support, and lend an ear and/or shoulder to listen to and/or to cry on. We can relate to each other and understand what other's are experiencing. We try to answer other's questions and if we cannot we will find the answer. There are reported to be hundereds of different types of neuropathies. We are all so different but at the same time all so much alike.
I am a member of the neuropathy association (http://www.neuropathy.org/). The GBS/CIDP Foundation International serving patients of GBS, CIDP and Variants with support, education and research. (http://www.gbs-cidp.org/).
The next support group meeting in the Palm Springs area is April 10th, 2009 at 10:00 AM at the Mizell Senior Center in Palm Springs. For more information you can contact me at my email address: david-hines@hotmail.com or you can call me at: (760) 671-5980 anytime.
Once again, Thanks to everyone who attended the meeting and I look forward to learning more about each one of you and hopes of a long friendship.
In closing, I recommend the following books, "Numb Toes and Aching Soles" "Numb Toes and Other Woes" both by John Senneff. "Peripheral Neuropathy When the Numbness, Weakness, and Pain won't stop" by Doctor Norman Latov, M.D., PhD.
In God's Healing Hands,
David Hines
Advocate, Patient and Child of God
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