Does anyone, that has CiDP, also have severe neuropathic Pain?
I was reading an article by Richard J. Barohn, M.D., Professor of Neurology at the University of Texas Southwestern Medical Center at Dallas, TX
He says that, "painful paresthesias are not common" ? I was diagnosed with CIDP but I suffer from dibilitating neuropathic pain in my feet and hands daily and I am using the Fentanyl Patch, strength 75mcg, every 48 hours, Elavil 150mg a day and Neurontin 3600mg a day and I still suffer from the pain. I also undergo IVIg infusions every 14 days. I do have some ok days, pain at 2-3, but other days my pain shoots upwards to a
7-9 on the pain scale. So, I was wondering how common place or uncommon place is severe neuropathic Pain with a dx of CIDP?
Thanks for any information you might beable to share.
Warmest regards,
David Hines
Blogger for "Hope-in-motion"
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2 comments:
Hello David, I have had CIDP for almost 6 years. I was very lucky and did not have any pain until about 5 months ago. I was going to start taking Gabapentin but I was trying to get pregnant at the time so we decided against it. I have just been trying to deal with it. Some days are better than others like you said. I am getting IVIG every 3 weeks and that has seemed to help a little. I just found out that I am 5 weeks pregnant so I am hoping that all of symptoms go away quickly like they did with my first child. So far it has seemed to lessen the pain quite a bit. Do you read the GBS-CIDP Foundation Internation forums? It is a great resource to connect with others that suffer from CIDP. I know that a lot of people there are on strong pain killers as well for their pain. It is a very common occurance in people with CIDP. Check out the forums, and I hope that I helped you maybe even a little. Keep your head up! :)
I have not been diagnosed with CIDP but I am suffering with severe pain in my feet and legs with some edema at the end of the day. I am currently taking Gabapentin and Cymbalta but it doesn't seem to help when I continue to exercise. What questions should I ask my doctor when I see him in a couple of weeks? Any suggestions? I know I have been dx with polyneuropathy. I would appreciate any help you can offer.
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