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Monday, January 12, 2009
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I am an advocate serving the peripheral neuropathy community. We provide support and education, advocate for patient's interests, and promote research into the causes of and cures for neuropathy. To those suffering from the pain of peripheral neuropathy in its most cruel forms, that they may find help and Hope. I Hope you can join us as we strive to keep HOPE-IN-MOTION !
5 comments:
Hello David my son lives in indio and has come down with an auto a mune proplem, has a hard time walking and getting around, just started p.t. here. he is 31 yrs old. he is now on prednesion steriod, seems like he is getting weaker, see's his nero on the 26th or so. he has seen dr. engle from usc and is seeing dr. nazerath here in the area. I live in wash. st. and can only get down once a month or so. we do have family in the area that help out. how long did it take for you to get on the ivig??? and why is not the first thing nero give folks??? are there more aggresive nero in the area??? any way thanks for all the work you do. my son is very hurt by all this and his condition. i know i have skipped around a lot. so much to think about. thanks Dan Godat
Dear Mr. Dan Godat,
I need your email address or some way to contact you and/or your son. I would like to talk to you and/or your son about your situation. My email address is: david-hines@hotmail.com
David Hines
my email is dgodat@localaccess.com thanks Dan
Hi David,
Our daughter was dianosed with CIDP three years ago. She is 14 and still has not regained use of her feet. They do not lift. The doctor told us that's pretty much it. She will not walk correctly again. Anyway, she was just asking me if there was any counseling she could get to help her deal with her condition. she said she feels like she just wants to hide in our house and not try anything new because it makes her stressed because she's afraid she won't be able to do it. For example, she has a trip to Washington DC to go on for her eigth grade trip. she's afraid she won't be able to keep up with everyone and take part in the activities. She wants to go to Christian counseling or talk to other people with her condition to maybe get help. Anything you can help us with, we appreciate it. Thanks, Lory
Thanks for commenting and for reaching out for your daughter. I will do everything I can to help but first I need a way to contact you?
An email address so I can get in touch with you.
Thanks,
David Hines
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